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Monday, July 25, 2011

Round 3...

Obviously each round of chemo is going to be drastically different for me.  Round one....horribly sick and tired, related it mainly to an allergic reaction to one of my anti-nausea medications, better with a liter of fluid.  Round two....not bad just tired.  Round 3....complete with an ER for a severe headache, lightheadedness and nausea along with tingling of my fingers and toes :( 

I had my chemo a week ago, went fine as usual.  Felt great on Tuesday and even Wednesday, tired but not bad.  Thursday morning I woke with a horrible headache, struggled all day with it.  Alternated tylenol and ibuprofen and even did a little soft tissue massage and heat therapy with our pt here at work.  Helped a little and I managed to make it through my work day.  Worsened throughout the evening and after 2 hours of feeling pukey and crying I broke down and called the on call oncology nurses.  I'd hoped they'd order a liter of fluids that I could do and feel better.  Unfortunately she thought it was necessary that I be seen so off to ER we went.  Thankfully the dr. and nurses were very understanding and were quick with running their tests and doing exams.  CT, c xray, labwork all returned fine, my white count is even up to 2.1!!  Still at risk for infections but not as bad!  A little of morphine for my headache and a liter of fluid and I felt much better.  I was actually able to rest.  Unfortunately when they took my vitals to send me home my blood pressure was only 74/48...YIKES!!  So the dr ordered another liter of fluid and said if it didn't come up to at least 90 they'd have to admit me.  I was thrilled when my blood pressure was 91/63...barely made it but I was headed home!!  Only to get to the parking lot and find our car had a flat tire.....at this point I was just ready to be home.  5 am we finally got home and crashed!! 

A new side effect has hit me...my fingers and toes are tingly.  You know that annoying tingly prickly sensation ya get when your feet are asleep???  It's super annoying and unfortunately I'm told that could last months after my last chemo session!!

I finally broke down and shaved my head on Friday afternoon.  After showering and having 2 clumps fall out I was ready.  I'd struggled with when to shave it and cried every morning while doing my hair and this was the last straw.  JR shaved while I sobbed....dried it up then moved on.  It's so much easier.....it takes me about 15 minutes to get ready now, showered and out the door.  Quite the change from having to dry and straighten my hair which usually took a good 30 minutes alone!  So I'm sporting my cute little hats and do rags!

My last round of chemo is scheduled for August 1st with my PET scan scheduled for the following week. I'm almost done.....hopefully :)  Thanks for the continued thoughts, prayers and kind words.  I have no doubt those are what are getting me through.  And a special thanks to my family for being so wonderful....especially my husband who has been my rock.

Thursday, July 14, 2011

Round 2

Sorry it's taken so long to update....no excuses, I've just been lazy. 
My 2nd round went much better!!  I didn't take my Compazine this time so I'm not sure if that made the difference of if it was not as hard on me.  Either way I was tired and had a little nausea but not near as awful as the 1st.  My mouth got pretty sore again but this time I was prepared with the different mouthwashes they gave me!  This round of chemo was only 4 hours cause I didn't have the trial and all the education that went with it so that was nice that it didn't take the entire day!
I have labs drawn weekly to check my blood counts and make sure that the chemo is not only effective at killing the cancer cells but also not depleting my healthy cells too bad.  My red blood cells and platelets have stayed steady but unfortunately my white blood cell count had plummeted.  I'm very low which means I'm at risk for not being able to fight infection.  As a preventative measure they've put me on anti-virals and antibiotics for an entire month.  Funny how one goes from not even taking a multi-vitamin to having a baggie of medicine :) In addition I've been wearing a mask at work and been even more careful about washing my hands and using sanitizer.  Luckily I'm pretty anal about hand cleansing anyway and constantly stress it at home!
I've had a few days that were emotionally trying.  My hair has started to thin pretty bad.  Fortunately I have super thick hair to start and nobody else notices too bad.  My family and I sure do though...it covers the sink and tub after my shower and styling my hair.  I'm armed with some super cute hats and wig for "if" I need to shave it.  I'm still hoping I won't lose it all.  I'm doing better with it but still sucks every morning dealing with the mess!
On a good note Dr. O measured my lump prior to chemo last week and it had already shrunk....almost in half!!  So we're making progress and that makes me optimistic that we really will be done after this one cycle of chemo!  So.....hopefully I'm halfway done!!  I see her on Monday them have chemo afterward!
Thanks so much for the continued thoughts, prayers and selfless acts from my friends/family.  It's so appreciated!!  I'm blessed to have such a great support system in my friends, family and co-workers. 

Friday, July 1, 2011

Happy 4th of July!!

Happy 4th of July everyone!! 

I've felt great this week which was a pleasant welcome after last week.  In my last blog I'd said the chemo went well and I felt good.  The sickness struck me after I posted!  I was pretty nauseated and tired the entire week.  On top of that they think I had an allergic reaction to my Compizine (med for nausea) so that made things worse and my mouth was sore and raw from the chemo.  That made eating/drinking difficult so I ended up pretty dehydrated.  However, after a liter of fluids and nausea medicine in my port on Friday I felt much better.  Combined with that an a prescription mouthwash that helps numb so I can eat/drink this week is going much smoother!!

I had my lab drawn today, my white count is very low.  So I'm now starting on 3 preventitive meds to help me from getting sick.  I'm supposed to wear a mask at work (luckily I'm slow right now!) and stay clear of sick people.

I've got my class reunion this weekend and 4th celebrations......so I'm going to arm myself with hand sanitizer and try to keep my distance without being rude :)

That's my week in a nutshell....I've got chemo on Tuesday so I'll update more then!!  Hope you and your families have a safe and wonderful holiday!!